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News & Dates

 

 
30.01.2026
 | 
11TH MEETING OF THE EUROPEAN CONSORTIUM OF WALDENSTRÖM’S MACROGLOBULINEMIA

Welcome to Athens

We are excited to welcome you for our 11th annual ECWM meeting, which is scheduled to take place in the enchanting city of Athens, Greece!

 

 - Please save the date 22nd – 24th of April 2026 -

 

 

 
27.01.2026
 | 
Announcement: Waldenstrong – German Patient Advocacy Group

An introduction

Dear all,

We are proud to announce the establishment of Waldenstrong as the German patient advocacy group associated with the European Consortium for Waldenström’s Macroglobulinemia (ECWM).

 

Waldenstrong currently brings together more than 200 members and is built on a strong foundation of active patient engagement, education, and collaboration. The group’s primary mission is to educate and empower patients, ensuring that no one is left behind in understanding their disease, treatment options, and care pathway.

 

Immediate support is at the core of Waldenstrong:
Patients can receive help within minutes via WhatsApp, where questions are answered promptly, providing rapid assistance and relief when it is most needed.

Key initiatives of Waldenstrong include:

  • The Annual Patient Meeting in the city of Ulm, a cornerstone event that fosters education, exchange, and community among patients and experts. On-demand videos of the sessions are made available afterward, so participants can revisit the content or catch up if they were unable to attend live.
  • WaldiWiki, an accessible and reliable online knowledge platform created by patients for patients
  • A Buddy Program, connecting patients with one another to provide peer support, shared experiences, and personal guidance

Waldenstrong is led by a dedicated and experienced team:

  • Uwe Kerscher, Founder of Waldenstrong
  • Lisa Marie Kaiser, President and honoary patron, administration and funding
  • Jürgen Goetz, a central driving force of the group and organizer of the Ulm Meeting

Together, they embody the values and commitment that define the Waldenstrong—community, knowledge-sharing, and patient-centered advocacy.

 

Waldenstrong works in close alignment with the ECWM to ensure that patient perspectives remain integral to research, education, and clinical collaboration. 

 

We look forward to continuing this important work and to expanding collaboration across the international Waldenström’s community.

 
28.05.2025
 | 
10TH MEETING OF THE EUROPEAN CONSORTIUM OF WALDENSTRÖM’S MACROGLOBULINEMIA (ECWM)

Thank you all for a great Meeting!

This year’s ECWM meeting in Chantilly was a tremendous success, bringing together distinguished key opinion leaders, physicians, and researchers from across Europe and the United States. It provided an exceptional platform for knowledge exchange and collaboration, all with the shared goal of improving the lives of our WM patients! Thank you all!

 
18.11.2024
 | 
AWARDS IWWM12

Jan Gösta Waldenström Award

Congratulations! Zachary Hunter is the recipient of the Jan Gösta Waldenström’s Award honoring his outstanding scientific contributions to the advancement of Waldenström’s Macroglobulinemia. The medal was given in a ceremony on the 12th International Workshop on Waldenström's Macroglobulinemia in Prague. Congratulations to our transatlantic advisor!

 

Jan Peter S. Bing Humanitarian Award

Recipients of the Jan Peter S. Bing Humanitarian Award, honoring extraordinary humanitarian work and activism on behalf of patients with Waldenström’s Macroglobulinemia are our beloved Marie José Kersten and Elizabeth Elting

 

Robert A. Kyle award

In honor of outstanding contributions to scientific and medical advancements in Waldenström’s Macroglobulinemia the Robert A. Kyle award was received by Alessandra Tedeschi and Stathis Kastritis

CONGRATULATIONS to your extraordinary achievement!

 

Young investigator Awards 2024

CONGRATIOLATIONS to our young European investigators! We are looking forward to your career in WM!

 
01.06.2024
 | 
Congratulations to the IWMF research grant recipients

We are delighted and proud to share with you this year's IWMF research grant recipients featuring some well-known names from the consortium.

 

CONGRATULATIONS on your fantastic achievement!

 

Strategic Research Roadmap Grants: to promote and support basic research leading to improved understanding of the cause, diagnosis, treatment, and cure for WM

 

Dr. Aldo M. Roccaro, ASST-Spedali Civili di Brescia, “Dissecting the Tumor Microenvironment in Waldenström Macroglobulinemia.” 

 

Seed Money Initiative: one-year awards to encourage innovative, novel ideas and bring new scientists to the WM field

 

Dr. Erna Magnusdottir, The University of Iceland, “Self-Organizing Stem Cell-Derived Bone Marrow Organoid System for Studying the Tumor Microenvironment in Waldenström's Macroglobulinemia”

 

Robert A. Kyle Career Development Awards: two-year awards to foster a new generation of talented WM researchers

 

Dr. Tina Bagratuni, National and Kapodistrian Univerity of Athens, “Tracking the Evolution of Ibrutinib Resistant Proteome in WM”

 

Dr. Cristina Jiménez, University Hospital of Salamanca/Biomedical Research Institute of Salamanca (IBSAL), "Deciphering Tumor Heterogeneity in Waldenström’s Macroglobulinemia through the Genomic and Immune Profiling"

 

Dr. David F. Moreno, Fundació de Recerca Clínic Barcelona - IDIBAPS, "Single Cell Subclonal Characterization and Evolution of the Genome and Transcriptome in IgM Monoclonal Gammopathy"

 

Companion Grant: basic science projects used as an adjunct to a clinical trial

 

Dr. Christian Buske, Dr. Christiane Pott, Dr. Philipp Nakov, Mouhamad Khouja and Lisa Marie Kaiser Universitatsklinikum Ulm and Kiel, "Deciphering the Dynamics of the Mutational Landscape in Patients with Waldenström’s“

 

 
27.05.2024
 | 
9TH MEETING OF THE EUROPEAN CONSORTIUM OF WALDENSTRÖM’S MARCOGLOBULINEMIA (ECWM)

Thank you all for a great Meeting!

This year’s ECWM stand-alone meeting was a resounding success. 

It brought together renowned key opinion leaders, physicians and researchers from across Europe and the USA, creating a prime platform for knowledge sharing and networking with the overall goal to improve our WM patients lives!

 
29.10.2022
 | 
Jan Peter S. Bing Humanitarian Award

Recipients of the Jan Peter S. Bing Humanitarian Award, honoring extraordinary humanitarian work and activism on behalf of patients with Waldenström’s Macroglobulinemia was awarded to three outstanding women: Shirley D´sa, Mary L. McMaster and Judith Trotman

 
27.10.2022
 | 
Jan Gösta Waldenström Award

Jan Gösta Waldenström’s Award

 

Congratulations! Irene Ghobrial, Christian Buske and Jesus San-Miguel are the recipients of the Jan Gösta Waldenström’s Award honoring their outstanding scientific and medical contributions to the advancement of Waldenström’s Macroglobulinemia. The medal was given in a ceremony on the 11th International Workshop on Waldenström's Macroglobulinemia in Madrid.

 

 

 
27.10.2022
 | 
Robert A. Kyle awards

Robert A. Kyle award

In honor of outstanding contributions to scientific and medical advancements in Waldenström’s Macroglobulinemia the Robert A. Kyle award was received by Stephan M. Ansell, Jorge J. Castillo and Ramon Garcia Sanz.

 

 

Robert A. Kyle Career Development Award 22

Congratulations to Simone Ferrero and his team on receiving the Robert A. Kyle Career Development Award 22 with their project “A MULTI-OMICS APPROACH FOR DECIPHERING THE MECHANISMS OF PROGRESSION IN PREMALIGNANT IGM GAMMOPATHIES: NEW INSIGHTS FROM THE FIL “BIO-WM” TRIAL”. Please see additional information here.