LOGIN
Clinical Intergroup
Research & Trials
Pathology Panel
Members
Patients
 

Welcome to the ECWM patient site!

Together with you, we would like to build a community that combines support, knowledge and research;

Bringing together patients, doctors and scientists to work together towards a world without Waldenström's Macroglobulinemia.


We would like to invite you to join us!


On this page you will find information on European research projects and initiatives working on Waldenström's Macroglobulinemia (WM).

You can access all information in English and German.


We would be pleased if we are allowed to contact you directly in the future.  If you agree, please send us an e-mail with your contact details:

 

Helpful links migt be:

 

 AMBITION, DEVOTION, AND MAKING A DIFFERENCE

Lisa Marie Kaiser

by Lisa Marie Kaiser, 2016 Young Investigator Award Recipient

Ambition, Devotian and making a Difference by Lisa Marie Kaiser article published in the IWMF patient magazine "torch" for people suffering from Waldenström's disease (WM) (article on page 6).

 

AMBITION, DEVOTION, AND MAKING A DIFFERENCE

 The WhiMSICAL (Waldenström's Macroglobulinemia Study Involving CArt-wheeL) study is utilising the CART-WHEEL questionnaire to capture data from WM patients

Lisa Marie Kaiser

Ibrahim Tohidi-Esfahani, Sydney Australia

We need you to keep CART-WHEEL in motion

 

Our questionnaire collects information from people all over the world, so we can build a rare tumor database to address some of the barriers facing effective research into rare types of tumors.

 

CART-WHEEL.org is designed to collect information from people such as you, who have rare cancers/tumors. Using the CART-WHEEL rare tumor database, people from all over the world are able to register and fill out a privacy-protected, internet-based questionnaire which covers information ranging from your tumor type and treatment received, to aspects of your family history. (www.cart-wheel.org)

 

Lets work together to understand rare diseases such as WM better!

 

Please click here to see further information

 WM-VOICE study

Josephine Vos

Josephine Vos, Amsterdam, Netherlands

 

 

The WM-VOICE study is scientific research about Waldenström macroglobulinemia (WM). The study focuses on what patients with Waldenström value most in their treatment. Researchers from the hematology department of Amsterdam UMC are conducting this study, in collaboration with Waldenström experts and patient organizations from the United Kingdom, the United States of America, Australia, Canada, and the Netherlands. The study is funded by the International Waldenstrom’s Macroglobulinemia Foundation (IWMF). This study is non-commercial. No pharmaceutical companies are involved in this study.

 

 

 

Lets work together to understand rare diseases such as WM better!

 

Please click here to see further information

 IWMF at the IWWM-12 (2024): with Professor Christian Buske

The International Waldenstrom's Macroglobulinemia Foundation (IWMF) attended the 12th International Workshop on Waldenstrom's Macroglobulinemia (IWWM), held in Prague on October 17-18, 2024.

 

During this significant event, the IWMF spoke with Professor Christian Buske, a leading Waldenstrom’s Macroglobulinemia (WM) expert from the University Hospital Ulm, Germany.

 

Watch Video here