Welcome to the ECWM patient site!

Together with you, we would like to build a community that combines support, knowledge and research;

Bringing together patients, doctors and scientists to work together towards a world without Waldenström's Macroglobulinemia.

We would like to invite you to join us!

On this page you will find information on European research projects and initiatives working on Waldenström's Macroglobulinemia (WM).

You can access all information in English and German.

We would be pleased if we are allowed to contact you directly in the future.  If you agree, please send us an e-mail with your contact details:


Helpful links migt be:



Lisa Marie Kaiser

by Lisa Marie Kaiser, 2016 Young Investigator Award Recipient

Ambition, Devotian and making a Difference by Lisa Marie Kaiser article published in the IWMF patient magazine "torch" for people suffering from Waldenström's disease (WM) (article on page 6).



 The WhiMSICAL (Waldenström's Macroglobulinemia Study Involving CArt-wheeL) study is utilising the CART-WHEEL questionnaire to capture data from WM patients

Lisa Marie Kaiser

Ibrahim Tohidi-Esfahani, Sydney Australia

We need you to keep CART-WHEEL in motion


Our questionnaire collects information from people all over the world, so we can build a rare tumor database to address some of the barriers facing effective research into rare types of tumors.


CART-WHEEL.org is designed to collect information from people such as you, who have rare cancers/tumors. Using the CART-WHEEL rare tumor database, people from all over the world are able to register and fill out a privacy-protected, internet-based questionnaire which covers information ranging from your tumor type and treatment received, to aspects of your family history. (www.cart-wheel.org)


Lets work together to understand rare diseases such as WM better!


Please click here to see further information